Optic Nerve Hypoplasia (ONH)
Lack of pigmentation of the optic nerve, is the underdevelopment or absence of the optic nerve in the brain can be combined with endocrine disorders. ONH is the single leading cause of blindness and visual impairment in children. In some cases ONH include agenesis (absence) or abnormal development in pellucidum and corpus callosum of the barrier. These distortions can be minor, and not a case of brain function or abnormal brain function could be affected range from mild to severe. Areas that could be affected involve gross motor skills and fine; intelligence, speech and interaction with people and people in some of these distortions cause seizures.
WHY STEM CELLS
- We have treated more than 40 patients with Optic Nerve Hypoplasia (ONH) with 50-70% improvement.
- Stem cells are the only treatment for Optic Nerve Hypoplasia (ONH).
- There are NO rejections.
PATIENT EXPERIENCE
FORT COLLINS - Macie Morse turned 16, got her learner's permit and got behind the wheel. That's big news for any 16-year-old, but it's a huge deal for a young girl who a year ago was nearly blind.
"It was one of the most exciting times of my entire 16 years," Morse said, sitting at Poudre High School, where she is now a sophomore.
Until she was 15, Morse had 20/4,000 vision in one eye and only light perception in the other due to optic nerve hypoplasia, or an underdevelopment of the nerve that transmits vision signals from the eye to the brain. She could make out human figures but not see details, could only read if the paper was within inches of her eye, and could only watch TV standing with her nose pressed to the glass.
Having 20/4,000 vision means that if Morse were tested on an eye chart, she could see things from 20 feet that an average person could see from 4,000, said James Thompson, an optometrist and owner of Advanced Eye Care in Fort Collins.
Someone with 20/30 vision can see from 20 feet what the average person can see from 30 feet.
Thompson said usually he stops at 20/400 and will mark a person with vision as "worse than 20/400."
Light perception means the eye can pick up images only if there is light in a room but cannot see anything.
"I've always wondered what it would be like to lay on the couch and watch TV," she said. "It looked so comfortable."
Now after experimental stem-cell treatment, Morse has 20/80 vision in one eye and 20/400-plus in the other.
"I always wondered what it would be like to see my friends," she said.
A trip to China
After spending most of her life feeling very concerned and protective of her daughter, Rochelle Morse was researching on the Internet when she found information about an experimental stem-cell injection treatment in China.
With an underdeveloped optic nerve, there are few treatments available.
"If the optic nerve isn't healthy, glasses aren't going to do anything for anybody," Thompson said.
Only 10 people had ever completed the treatment and it was very costly - $40,000, not to mention travel costs to China.
Rochelle Morse sought help from the community, family and friends, and before the money was raised, she booked the plane tickets and enrolled her daughter.
"I knew we would make it," Rochelle Morse said.
After raising $15,000 from community donations, the mother and daughter set out for China on July 4.
Though both said they were nervous about the new treatment, they knew it was their only chance to see Morse's life improve. She had few friends, bad grades and didn't know where else to turn.
This is an excerpt from stemcellschina.com, to read the entire story and view videos go to: http://www.stemcellschina.com/index.php/en/news/optic-nerve-hypoplasia/1067-teen-finds-success-in-china-from-treatment-with-stem-cells
STEM CELL ADVOCATE
Email: [email protected] | Phone: 941-235-0088 | Fax: 941-624-6133
Email: [email protected] | Phone: 941-235-0088 | Fax: 941-624-6133